Samantha is an influential executive in patient advocacy and gene therapy development, who excels in the development of natural history studies, registries, novel patient-centered outcomes, early access planning and collaborative networks. She previously served as CPAO at Lysogene, and prior to that, was Director of External Affairs and Rare Disease Partnerships at Orphan Europe. Samantha was a founding member of several pilot EC European Reference Networks – virtual networks of healthcare providers aiming to facilitate discussion on complex or rare diseases.

At InnoSkel she is responsible for engaging with the patient and scientific community to ensure that the voices and priorities of patients and other stakeholders are reflected in all relevant aspects of research.